Special Kids with Special Needs are God's Greatest Gift


Every little child has own uniqueness
His eyes are glowing like gems
His skin is like a smooth petal
His smile is like angel's face
Everywhere is a paradise
When Mother's heart sees
the joy
of her
C H I L D.

Clarence with his Papa Charlie (top-left) and Mama Mahlen (top-right)
Clarence with his Papa Charlie (top-left) and Mama Mahlen (top-right)

Nine years ago, Clarence Jhoize was brought to life. It was the day when his parents felt the overwhelming joy of having a son of their own. He completes the Magos family with his two older sisters. He's a normal child at birth... He would cry when he's hungry or if it's time for a diaper change... But as he turned a month older until he reached his third, something was not right. He could hardly hold his head up, make no vowel noises and could not turn his head round to sound. He's not progressing at the same rate as a normal child his age.

Such signs of developmental delay brought distress to the family. He underwent some series of tests and he's diagnosed to have been suffering from "Global Developmental Delay" or is defined as any significant lag in any child's physical, cognitive, behavioral, emotional or social development as compared to normal ranges. He has "seizure disorder" that greatly affect the development of his brain cells. He's being treated and monitored by a specialist in a regular basis and because of this condition, his Mama Mahlen was compelled to give up her job to focus on him and Papa Charlie should work double-time as a ship's crew in order to sustain his needs and provide appropriate attention.

Clarence or "Talens" as we fondly call him is improving a lot. He's attending special classes at Accelerated Christian School. Special education is designed for children like him and it's helpful for them to do well in school. He can now write his name, able to run, skip and hop. Although he can hardly talk straight and utter words correctly, calling his Papa and Mama is such a rewarding feeling. He can count, color and can attend to own toilet needs. Now, he can understand simple commands and knows how to distinguish his things from others.

Gail with his Papa Ed (top-left) and Mama Arlene(top-right)
Gail with his Papa Ed (top-left) and Mama Arlene(top-right)
Gail Anchetawho is 10 years old, is my niece to my cousin Arlene and she too suffers from almost the same condition but she can hardly walk without her back brace. According to Arlene, she taught Gail how to take a bath on her own and let her be independent when it comes to personal hygiene.

When I got pregnant with Kiko, I have had a lot of apprehensions. I was so afraid then that I might give birth to another baby with congenital defects or genetic abnormalities because of the similar occurrence of  this condition with the newest generation in our family.  But my worries were all gone now.

I will discuss about Gail's case on a separate post and how my cousin Arlene and her husband cope up with the challenge of having not only Gail but another child with slight developmental delay as well.


In this connection, I was moved by the story of a father who bravely face the greatest challenge of his life... taking care of his handicapped son and join him in his journey to prove to the world that despite the deformity, he will pursue his goals.

Witness the unconditional love of Dick Hoyt to his son, Rick with Cerebral Palsy.

"Appreciate life even if it's not perfect."

Rick Hoyt was diagnosed with cerebral palsy at birth after his umbilical cord became twisted around his neck, which caused the blockage of oxygen flow. As a result, his brain cannot send the correct messages to his muscles.  Many doctors encouraged the Hoyts to institutionalize Rick, informing them that he would be nothing more than a "vegetable."  
His parents held on to the fact that Rick’s eyes would follow them around the room, giving them hope that he would somehow be able to communicate someday. The Hoyts took Rick every week to Children’s Hospital in Boston, where they met a doctor who encouraged the Hoyts to treat Rick like any other child. Rick's mother Judy spent hours each day teaching Rick the alphabet with sandpaper letters and posting signs on every object in the house. In a short amount of time, Rick learned the alphabet.

At the age of 11, after some persistence from his parents, Rick was fitted with a computer that enabled him to communicate and it became clear that Rick was intelligent. With this communication device, Rick was also able to attend public school for the first time.

Rick went on to graduate from Boston University in 1993 with a degree in special education and later worked at Boston College in a computer lab helping to develop systems to aid in communication and other tasks for people with disabilities. (source)




36 comments:

  1. I feel for these kids because I have a nephew who suffers from a similar condition. It's heartbreaking yet empowering at the same time. Yes, they are God's special gift to us.

    ReplyDelete
    Replies
    1. This is very true, Ms Pepper. Parents and family of kids with special condition need to be patient and strong-willed to go through the process of giving the BEST care for them.

      Delete
  2. kudos to you and your deep love for your child! You are so blessed!

    :)

    ReplyDelete
    Replies
    1. I do appreciate your visit, T.R. but you seem to overlook the people involved in my post... it's about my nephew and niece, Clarence and Gail.

      Delete
  3. Some kids may have special needs but all of them are unique and special little angels that can really brighten up a family.

    ReplyDelete
    Replies
    1. The special attention we give to these kids require extra effort. It requires tremendous amount of understanding and compassion.

      Delete
    2. It really takes compassion and understanding and of course, extra time for them

      Delete
  4. I've read about Dick and Rick Hoyt and they just show how humans can triumph over limitations in the same way that many special kids do.

    ReplyDelete
    Replies
    1. I agree to that, Ms Teresa. The power of human mind can surpass the power of any muscle in our body and the power of determination to achieve anything despite the hurdles, can bring inner contentment and overflowing joy.

      Delete
    2. Let they and people like them serve as inspiration to others.

      Delete
  5. They are God's wonderful creations. Special kids are indeed in need of special needs, always.

    ReplyDelete
    Replies
    1. ... and they sometimes possess such skills and talents that may be far more excellent than normal kids have.

      Delete
  6. Still, our kids are God's gifts to us! Thankful for the free services being provided here in US schools for students with developmental delays and other eligibilities.

    ReplyDelete
    Replies
    1. Kids there are very fortunate to have these free services. In the Philippines, there are services free of charge as well and SPED schools are available too but the classrooms are very much populated. Kids with special needs should be attended on a one-on-one basis as much as possible.

      Delete
    2. I agree! Good to know we have free services in our country too!

      Delete
  7. Special children are really special and I am so glad here in the US that they're treated like any other children. We have on one in the family that really needs special care but now she's really doing great despite her being wheelchair-bound.

    ReplyDelete
    Replies
    1. That's good to hear, Ms Bless. Having a family member with such condition brings us much closer and somehow, make us realize that we are always here for each other no matter what.

      Delete
  8. the unconditional love of parents to their child is incomparable... just sad to see children with these conditions... good thing they have special parents. Yahweh bless.

    ReplyDelete
  9. despite of any condition an person has we have to look at their eyes like any human being with no reservation because of any physical delay ...we don't need to show them how special they are , just consideration to make them feel part of a productive community. thanks for this post .. very inspiring

    ReplyDelete
  10. It is really important to address immediately if we notice something wrong with our child's development. Otherwise, we could be late and suffer more as they grow.

    ReplyDelete
  11. I can relate with this topic. I have a nephew and he is ten now and he is a special child too. He attended in a normal school though and he maintains excellent grades. The mom who is a license Engr chose the family so; she was a stay at home mom for a decade now. Special children are gifts from God. They need quality time and strong support from the family. We love him dearly and we are so proud of having him in the family.

    ReplyDelete
  12. I really admire people who have patience... saludo po ako sa inyo :)

    ReplyDelete
  13. My prof once told us, "Do not tell someone directly that he/she has a particular condition." It's more important to let them know that they have unique qualities and that they are special

    ReplyDelete
  14. You know what, special kids are gifts from god for special parents. It implies that parents blessed with special child must seek wisdom on how to bring up this child.

    ReplyDelete
  15. As long as the kids can be loved like nothing's different about them, I'm sure they'll grow up to be awesome people no matter what :)

    ReplyDelete
  16. They're both angels to me. They are so lucky to have you sis, the love, care and understanding is there. Good life.

    ReplyDelete
  17. The Dick & Rick story is a true inspiration. The first time I saw this video before, I was deeply moved by how much devotion the father has poured unto his child.

    ReplyDelete
  18. we might think that we take good care of them in extreme because they are special.. but I believe that this people are angels sent here on earth to take good care of us.. :D more power!

    ReplyDelete
  19. Kids with Special Needs, needs all the love and understanding of not only their family but most especially the entire community. Thank you for posting about this, I hope more people will understand how to deal with special kids.

    ReplyDelete
  20. our kids are best gift from God, no matter who they are. Kids are all special and must be treated the same.

    ReplyDelete
  21. Special Kids are a blessing to a family. You know why? because they help keep the family bonding, strengthen responsibility and most of all - "a loving family". They are not burden but a light-weight angels that will be there who needs your help :) I'm so proud of you for sharing this to us.

    ReplyDelete
  22. my family always had special children in every generation...they are loved unconditionally. My aunt who was born normal and had complications from measles when she was three yrs old is now 70++ of age. Her presence in our life has taught us patience and understanding and above all, compassion.

    ReplyDelete
  23. I admire parents who have special kid.. I cannot imagine their patience, their compassion and their hardwork to make their kid's life easy midst their condition.

    Rick's story is very inspiring, I hope every parent would do what Rick's parents did

    ReplyDelete
  24. I remember the Hoyts. I saw a vid of them once, with the background song "I can only imagine" by Mercy Me. I cried like a baby.

    ReplyDelete
  25. This post is very moving. I have friends who have siblings with special conditions, and I am just inspired by how loving and understanding they are. The courage of their special siblings is also very admirable. Anyway, I don't think it's impossible to bring out the talents and skills of special kids. More often than not, they're actually intelligent and creative.. :)

    PS: I learned about the Hoyts back in college and they are an inspiration to me. Watching the video now teared me up again for the nth time.

    ReplyDelete

Your thoughts, ideas, opinions and suggestions about my post are highly appreciated. My deepest and warmest greetings to you. GOD bless always!

Share This